This time was the first time I finally had the chance to meet Nadene Henderson, our Site Coordinator. She has been a tremendous help getting all of our appointments scheduled and helping us to get to and from Pittsburgh answering any and all questions along the way.
Today we hit some milestones. My "little" boy weighed in at 81 lbs! He is growing like crazy too. I got a little teary when Dr. Vockley got to the "short stature" box and said he officially had to circle "resolved" because he has hit the 25th percentile. Talk about prayers answered! Here's a clip where Dr. Vockley is examining Cannon and comments on his sclera.
Cannon grew 131.7 cm from 129.59 cm in the last 4 months! I thought he had been growing before my eyes... and he has been!
AND he gained 10 kilos which isn't surprising with my big eater.
Once we signed the consents, he had his blood drawn and it was time for breakfast: cornflakes with chocolate milk (gag). He was super excited for his new concoction and passed the time entertaining all the nurses with his silly jokes, videos and bringing them up to speed on the latest cool video games and Minecraft tricks.
From there we went for a kidney ultrasound. Luckily, we didn't have to have the full game of x-rays this visit, which usually is somewhat time consuming.
From there we went to our good friend Chris in physical therapy. Chris has watched Cannon grow before his eyes and has seen him go from a long jump of just a few inches to today's personal record BREAKING 4 FEET!!! WOW. CRAZY. This kid went from a 4 inch long jump to 4 FEET in 4 YEARS. He went from 35" to 48" in just the past 4 months!
Now on to eyes, Cannon's least favorite part of the day with a dilated eye exam to look at his optic nerve. We have been concerned about his optic nerve since he had his craniectomy in March 2014. We still need to have another MRI before he's in the clear as his 6 month post-op showed that his syrinx was still pretty pronounced, which wasn't the greatest news. We continue to pray and be hopeful that we see some good progress at the 1 year mark.
The ophthalmologist examined Cannon and said that his optic nerve looked good. He still has some minor calcification on the surface of his eye but that was consistent with what we have seen before and they don't seem too concerned about it.
Overall a great visit and we are headed to the airport to hopefully catch an earlier flight home!
