Dr. Heuer came into the waiting room and told us the surgery went much smoother than he had anticipated. Last time he had surgery, you might remember that the doctors were concerned because his arteries were enlarged and this forced them to be more conservative in the procedure as he lost a lot of blood. This time - because he grew - and pressure has somewhat improved - those arteries had moved and presented no issues! So doctors were easily able to get to the area of concern, remove the scar tissues that had built up causing more pressure from the previous craniectomy. They were also able to open up the dura, which we hope will relieve pressure even more.
We are in the pediatric ICU (PICU) and he was awake when we arrived. His pain seems under control but as the meds we wearing off, we have our moments. He has a morphine pump and is still taking Valium to help with muscle spasms.
His incision looks great - the doctors here must have aced their needlepoint classes as I have never seen such small, intricate stitches.
The best part is his spirit has not been brought down at all by this. He still had all his wits about him -- and his sense of humor. Apparently during the surgery they removed his lower hospital pants. He did not like this at all! When we asked him how he was post-surgery, all he could say was "Where are my pants?" And when the nurse said, "ok anything I can get you?" He said, "Yes, pants!"
And... his hunger has already returned which really shocked us all (even the nurses and doctors!)
For now, the pain is at bay and he is sleeping peacefully. Cannon loves receiving messages so feel free to send videos or texts to me at 908-377-8700. I will read them to him and show him when he is up and feeling better. Thank you again for all your prayers!
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