Sunday, November 1, 2015

Genius bar, anyone?

So we are getting cheeky in our 1+ month stay at CHOP. 

We've definitely had our share of ups and downs. The experts (Infectious disease, dermatology and neurology) highly suspect the rash and associated fever to be an allergic reaction to an antibiotic. Which antibiotic, we aren't quite sure because it seems to be a delayed reaction and he has been on 4 different antibiotics. Bloodwork and CSF fluid cultures point to it as well, which is actually not the worst thing so we are hopeful we can keep the rash under control. He is under tight watch here in the ICU in the meantime. It seems to flare up, and then settle down with the steroids. The hope is we will get this under control soon and can go home this week.
 He is getting a little sick of the solo pics him so he wanted both of us today.

In the meantime, he's back to his jokes and shenanigans. The good ol' fashioned whoopie cushion now has an "app" so he's been having fun with the nurses and getting stern talks by mom on a regular basis. 

He has been spending a lot of time online trying to catch up on school work (1%), playing Minecraft (94%) and Facetiming friends (5%). As such, we thought after all we have been through, we would get him a computer, with a promise he will spend more time doing schoolwork. So a few weeks ago we got him a Mac. 

Fast forward to yesterday, when they were still ruling out causes of the rash and decided to do a strep throat culture, 10 minutes after breakfast. Probably not the best time to do a throat swab. Without going into graphic details, Cannon's gag reflex kicked into full gear and he threw up all over his brand new computer. 

It is not working now.

So now the world has ended because there is "nothing to do". 

Now, we are doing boring stuff like playing cards, Dominoes... even talking to each other. Ugh! This stinks!

Hard to believe it's November already. Hoping we can turn the corner with all of this and get back to normal soon. Normal never felt so good.




3 comments:

  1. Deb - so happy to see the smile and the personality are back today. Hugs!!! Di & Colin

    ReplyDelete
    Replies
    1. Thanks, Diane and Colin. We are still enjoy the hot fries. Apparently they are a great distraction to get him to take the oral meds when he doesn't like the taste!

      Delete
  2. sending positive thoughts and vibes you guys way

    ReplyDelete