No news is good... and bad news

Sorry for the delay in an update - we have been taking it day by day.

The good news is that were discharged from CHOP yesterday. The doctors were pleased with the labs and looked like we were headed in the right direction. Cannon's incision is looking like it is healing well. Praise God!

But then... no sooner did we get home that Cannon started to get a fever. So back to the ER we went today (Morristown) for more labs. Luckily things looked ok - so the doctors are puzzled about what might be causing his fevers. It has been a very big challenge for me to distinguish between meningitis symptoms and his post surgery symptoms (fever, stiff neck). They both exhibit the same kinds of clinical symptom so I have kept calling CHOP's docs on call every day to get guidance.

Looks like we are headed back to CHOP tomorrow as an outpatient so that they can keep close watch on him to ensure we aren't dealing with another infection.

In the meantime, we have a crazy schedule trying to balance kids schedules, work and then the medical schedule he is on. He still has his PICC line and he has to get his antibiotic 4 times a day - 6am, noon, 6pm and midnight. The medicine has to sit out at room temp for an hour before dosing and takes about 35-40 minutes to administer which has wreaked havoc on any kind of sleep schedule.

I felt compelled to update everyone on this news in case anyone is wondering why we dropped off the radar. Thank you again for all of your continued thoughts and prayers. We really could use them.