Wednesday, October 14, 2015

Prayers needed

Hello - this has been a real roller coaster for all of us. The latest is this:

  • Cannon has been progressively worse after getting his stitches, spiking intermittent fevers (as high as 101.7 at home) and having tenderness in his neck and incision site.
  • Brought him back to CHOP Tuesday -- he had a spinal tap so they could test fluid for bacteria. 
  • There's still no definite word on what is going on. His spinal fluid tested as if he has bacterial meningitis. 
  • There is also a kind of chemical meningitis common with spinal/skull surgeries that presents as bacterial meningitis, however they have to take the fluid sample and see if any bacteria grows. We are in this waiting period.
  • Something is growing - but we aren't sure if it's bacteria or a contaminant from the procedure or what. First they said bacterial, then they weren't sure, then suspect chemical. Just don't know yet. However, they are inclined to think that it is bacterial at this point. 
  • He's in quite a bit of pain. They are trying to keep him comfortable on pain medications. Last night his fever got as high as 104 degrees. 
  • Since they don't know, they are treating as if bacterial to play it safe. He's on Vancomyacin and Cefepime as well as steroids.
  • We don't know if he will need more surgery - they are talking about doing a "washout" but don't know what that means yet.
Please continue to keep him - and all of the the people involved in his care in your prayers. It has been very scary for all of us. Thank you. 

4 comments:

  1. This breaks my heart!!!!!!! Regardless how much of a fighter he is, sometimes you just shouldn't have to continue fighting.. Sometimes you just need that break. The break of feeling good with plenty smiles and laughter. I'm so sorry he's going through this. You are also an incredible fighter yourself. But if there's anything any of us can do, do not hesitate to ask!!!!! Praying for cannon and family!!!!!! Much love, Julie

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  2. This breaks my heart!!!!!!! Regardless how much of a fighter he is, sometimes you just shouldn't have to continue fighting.. Sometimes you just need that break. The break of feeling good with plenty smiles and laughter. I'm so sorry he's going through this. You are also an incredible fighter yourself. But if there's anything any of us can do, do not hesitate to ask!!!!! Praying for cannon and family!!!!!! Much love, Julie

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  3. So so so sorry to hear this Deb. Prayers and good thoughts are coming your way. Wishing good health for Cannon and a speedy recovery.

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  4. Sending lots of love, Debbie. Poor all of you. xoxo

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